Wilson’s Disease Resources & Information
by Robert S. Stall MD (has Wilson’s Disease himself)
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Dr. Stall’s Story | Information | On-Line Discussion Group | Organizational Links | Research Studies | Slideshows | Wilson’s Disease Experts & Associations |
Enter the Wilson’s Chat Room to ask questions
and dialogue with other about Wilson’s Disease!
Wilson’s Disease Association International
Dr. Stall’s left eye with K-F Ring – August, 1989
Wilson’s Disease (Wikipedia)
History of Wilson’s Disease (from whonamedit.com)
Wilson’s Disease Mutation Database
About Dr. Samuel A. K. Wilson (1878-1937)
I. Herbert Scheinberg Obituary (c. 1919 – 4/4/09)
Slide Shows
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The Science
Dr. Moore to 1st Year UB Medical Students 3/24/08
Dr. Novak to 1st Year UB Medical Students 3/24/10
The Personal Side
Dr. Rob Stall to 1st Year UB Medical Students 3/24/10
Dr. Rob Stall (virtual presentation) to 1st Year UB Medical Students 3/23/11
Dr. Stall’s WD Story
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Read
Audio (from 1989) 4 min
Video of Dr. Stall 8-14-1989 first dose of penicillamine – 2 min
Video of Dr. Stall 8-29-1989 videotape by Dr. Munschauer – 2 min
Video of Dr. Stall 9-5-1989 description of symptoms & diagnosis – 43 min
Information
Note: Treatment information may not be current
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Association with Chromosome 13 (Google search – multiple links)
Copper Content of Food (from USDA 8-19-05)
Copper In Human Health | Foods High In Copper
Dr. Stall’s Wilson’s Disease Web Links
Frequently Asked Questions (FAQ’s) About Wilson’s Disease
Wilson’s Disease Diagnosis & Treatment Guidelines (AASLD 2008)
Wilson’s Disease Diagnosis Algorithm (Hepatology 2008)
Wilson’s in Septuagenarian Siblings (Hepatology 2005)
See the Wilson Disease Association web site for up-to-date treatment recommendations GALZIN (Zinc acetate) – for maintenance or treatment of presymptomatic patients
Galzin (Gate Pharmaceuticals web site)
Galzin (Wilson Disease Association International web site) | Zinc Availability World-Wide
UPDATED Liver transplantation Wikipedia | Yale-New Haven Hospital
NIH – Wilson’s Disease
Patient Histories
Penicillamine (Cuprimine) (from the PDR) (including Contraindications, Warnings and Adverse Reactions)
USDA Copper Content of Foods (ranked by highest to lowest copper content) – .pdf file
Wilson’s Disease – A Clinician’s Guide to Recognition, Diagnosis, and Management (book by Dr. George Brewer)
Wilson’s Disease for the Patient and Family (book by Dr. George Brewer)
On-Line Discussion Group
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Sign-up: WILSONS-LIST
The listserv for people interested in the diagnosis & treatment of Wilson Disease.
Organizations – Information and Support
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National Organization of Rare Diseases (NORD)
http://www.rarediseases.org/
Orphanet
http://www.orpha.net/consor/cgi-bin/Disease_Search_Simple.php?lng=EN&diseaseGroup=Wilson+disease
Brazil
http://doencadewilson.org/
Denmark
http://www.wilsons.dk/
France
http://www.abpmaladiewilson.fr/
Germany
http://www.morbus-wilson.de
Israel (in Hebrew only)
http://hfmws.110mb.com/
Romania
http://www.wda-romania.org
Sweden
http://hem.passagen.se/wilsons/
United Kingdom
http://www.wilsonsdisease.org.uk/
USA (WDA International)
http://www.wilsonsdisease.org/
WD Support Groups
http://www.trientine.com/wilsons-disease-support-groups/
Wilson France database
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958411/
Personal Web Pages
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Dr. Robert Stall
Williamsville, NY
stallgeriatrics.com
Research
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Top Authors
Hepatolenticular Degeneration (Wilson’s Disease) research papers (from biomedexperts.com)
Currently Enrolling Patients
Single daily dosage of trientine for maintenance treatment for Wilson disease (Yale – Dr. Schilsky)
Previous Studies
Protocol 310–Treatment of Wilson’s Disease With Zinc
Protocol 801–Initial Therapy of Wilson’s Disease with Ammonium Tetrathiomolybdate (TM)
Worldwide Wilson’s Disease Experts & Associations
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Fred Askari, MD PhD
University of Michigan Medical Center, Ann Arbor, MI
Web Profile | UM Wilson Disease Center of Excellence
Michael L. Schilsky, MD
Yale School of Medicine, New Haven, CT
Web Profile
Click here for other Wilson’s experts in the USA and around the world
This page designed by Dr. Rob Stall
Established 3/30/96; last update 12/1/11
Copyright 1996 -2011 Robert S. Stall, MD
