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Wilson's Disease Resources & Information

by Robert S. Stall MD (has Wilson's Disease himself)

[Information] [On-Line Discussion Group] [Organizational Links] [Research Studies] [Wilson's Disease Experts & Associations


Rob Stall MD
November, 2004




Dr. Stall's left eye with K-F Ring
(8/1989)

E-mail Dr. Stall

Wilson's Disease
(Wikipedia)

Wilson's Disease Association International

Wilson's Disease Slide Show - The Science

Dr. Moore to 1st Year UB Medical Students 3/24/08

Dr. Novak to 1st Year UB Medical Students 3/24/10

Wilson's Disease Slide Show - Personal Side

Dr. Rob Stall to 1st Year UB Medical Students 3/24/10

Wilson photo

Scheinberg photo

History of Wilson's Disease
(from whonamedit.com)



Wilson's Disease Mutation Database

Dr. Stall's WD Story

Read | Audio (from 1989)

 (4 minutes)

Video of Dr. Stall 8-14-1989
(first dose of penicillamine - 2 min
)

Video of Dr. Stall 8-29-1989
(videotape by Dr. Munschauer - 2 min)

Video of Dr. Stall 9-5-1989

(description of symptoms & diagnosis - 43 min)


2005 WDA Conference

Information Back to top

Copper Content of Food (from USDA 8-19-05)

 

Wilson's Disease Diagnosis & Treatment Guidelines (AASLD 2008)

Wilson's Disease Diagnosis Algorithm (Hepatology 2008)

Wilson's in Septuagenarian Siblings (Hepatology 2005)

Association with Chromosome 13
(Google search - multiple links)

Frequently Asked Questions (FAQ's) About Wilson's Disease

Copper In Human Health | Foods High In Copper

Dr. Stall's Wilson's Disease Web Links
Note:  not all treatment information is current
See the Wilson Disease Association web site for up-to-date treatment recommendations

GALZIN (Zinc acetate) - for maintenance or treatment of presymptomatic patients
Galzin (Gate Pharmaceuticals web site)
Galzin (Wilson Disease Association International web site)
Zinc Availability World-Wide

Liver Transplant Guide

NIH - Wilson's Disease

Patient Histories

Penicillamine (Cuprimine) (from the PDR)
(including Contraindications, Warnings and Adverse Reactions)

Trientine Availability (Merck Patient Assistance Program)

USDA Copper Content of Foods (ranked by highest to lowest copper content) - .pdf file

Wilson's Disease
A Clinician's Guide to Recognition, Diagnosis, and Management

(Book by Dr. George Brewer)

Wilson's Disease for the Patient and Family
A Patient's Guide to Wilson's Disease and Frequently Asked Questions About Copper

(Book by Dr. George Brewer)


On-Line Discussion Group Back to top

 
Sign-up: WILSONS-LIST
The listserver for people interested in the diagnosis & treatment of Wilson Disease.

Organizational Links Back to top

 
National Organization of Rare Diseases (NORD)
http://www.rarediseases.org/
WDA of Brazil
http://doencadewilson.org/
WDA of Denmark
http://www.wilsons.dk/
WDA of France
http://orphanet.infobiogen.fr/associations/WILSON/WILSON.html
WDA of Germany
http://www.morbus-wilson.de
WDA of Romania
http://www.wda-romania.org
WDA of Sweden
http://hem.passagen.se/wilsons/
WDA of United Kingdom
http://www.wilsonsdisease.org.uk/
WDA of USA (WDA International)
http://www.wilsonsdisease.org/
Wilson's Disease Web Site - Israel (in Hebrew only)
http://hfmws.110mb.com/

Personal Web Pages Back to top

Ms. Dalia Mikha
Melbourne, Victoria Australia
www.wilsonsdiseaseonline.com
Dr. Robert Stall
Williamsville, NY
stallgeriatrics.com
Mr. Tom (Billy) Walters
Doncaster, UK
www.bountyhunter.org.uk

 Research Back to top

TOP AUTHORS
Hepatolenticular Degeneration (Wilson's Disease) research papers (from biomedexperts.com)
CURRENT ENROLLING PATIENTS
Single daily dosage of trientine for maintenance treatment for Wilson disease (Yale - Dr. Schilsky)
PREVIOUS STUDIES Protocol 310--Treatment of Wilson's Disease With Zinc
Protocol 801--Initial Therapy of Wilson's Disease with Ammonium Tetrathiomolybdate (TM)

 Worldwide Wilson's Disease Experts & Associations Back to top

Fred Askari, MD PhD
University of Michigan Medical Center, Ann Arbor, MI
Web Profile | UM Wilson Disease Center of Excellence

Michael L. Schilsky, MD
Yale School of Medicine, New Haven, CT
Web Profile

Click here for other Wilson's experts in the USA and around the world


Robert Stall MD, Geriatrician, Stall Geriatrics LLC
Innovations in Older Adult Care
What Should You Expect At Your Age?  A Lot! ™

Office address: 350 Greenhaven Terrace, Tonawanda, NY  14150
Phone 716-213-4345 FAX 888-387-1238 Email drstall@stallgeriatrics.com Web http://stallgeriatrics.com/

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(established 3/30/96; last update 1/29/11)

Copyright 1996 -2011 Robert S. Stall, MD
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